ME/CFS

The US Institute of Medicine’s (IOM) committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has recommended that the name ME/CFS be changed to Systemic Exertion Intolerance Disease (SEID). It has also recommended that the disease be assigned a new code in the current WHO International Classification of Diseases, …

By PENNY SWIFT The authors of a controversial PACE trial analysis published online in The Lancet Psychiatry on January 13 have stated that the fear of exercise in chronic fatigue syndrome (CFS) is not “irrational”, and that the illness is not an exercise phobia or psychological. The have also admitted …

By PENNY SWIFT A new clinical case definition and diagnostic criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) will be announced by the US Institute of Medicine (IOM) tomorrow, six weeks earlier than its due date, March 22. Fears are, because the National Institute of Health (NIH) insisted on including behavioral …

The question is, are CFS researchers manipulating results with selective reporting of their findings? By PENNY SWIFT The latest research report based on the widely criticized 2011 PACE Trial Study that recommends exercise for chronic fatigue syndrome (CFS) patients, is thwart with issues that compromise its credibility, according to a …

By PENNY SWIFT A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy (GET) is an effective treatment for Chronic Fatigue Syndrome (CFS). The Lancet Psychiatry report, published earlier …

By PENNY SWIFT Continuing to use the Oxford definition (of ME/CFS) may impair progress and cause harm. National Institutes of Health Pathways to Prevention Workshop: Advancing the Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome draft statement The United States National Institutes of Health (NIH) has issued a draft report that highlights …

By PENNY SWIFT ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms. This, the report maintains, is a major negative factor that perpetuates both fatigue and disability in Chronic Fatigue …