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IOM Wants ME/CFM Name Changed to Systemic Exertion Intolerance Disease (SEID)

Systemic Exertion Intolerance Disease

The US Institute of Medicine’s (IOM) committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has recommended that the name ME/CFS be changed to Systemic Exertion Intolerance Disease (SEID). It has also recommended that the disease be assigned a new code in the current WHO International Classification of Diseases, tenth edition (ICD-10). In addition, five main symptoms have been ... Read More »

CFS Is Not a Psychological Illness or Exercise Phobia

exercise phobia

By PENNY SWIFT The authors of a controversial PACE trial analysis published online in The Lancet Psychiatry on January 13 have stated that the fear of exercise in chronic fatigue syndrome (CFS) is not “irrational”, and that the illness is not an exercise phobia or psychological. The have also admitted that CFS is an illness “where exercise increases symptoms.” Writing ... Read More »

New Clinical Case Definition for ME/CFS: Fears It Will Be Labeled “Behavioral Health”

behavioral health

By PENNY SWIFT A new clinical case definition and diagnostic criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) will be announced by the US Institute of Medicine (IOM) tomorrow, six weeks earlier than its due date, March 22. Fears are, because the National Institute of Health (NIH) insisted on including behavioral health specialists on the IOM ME/CFS committee, that the new ... Read More »

The Validity of CFS Research Findings Under Fire

CFS research

The question is, are CFS researchers manipulating results with selective reporting of their findings? By PENNY SWIFT The latest research report based on the widely criticized 2011 PACE Trial Study that recommends exercise for chronic fatigue syndrome (CFS) patients, is thwart with issues that compromise its credibility, according to a psychologist in New Zealand. In addition the discovery by the ... Read More »

US Neuroscientist Says Exercise is a Noxious Stimulus That Worsens Symptoms of ME/CFS

Symptoms of ME/CFS

By PENNY SWIFT A highly regarded American neuroscientist who has researched CFS for more than a decade, has decried media reports based on The Lancet Psychiatry’s recent scientific article that claims graded exercise therapy (GET) is an effective treatment for Chronic Fatigue Syndrome (CFS). The Lancet Psychiatry report, published earlier this week, is the sixth based on the now dated ... Read More »

US NIH Report Calls for UK Definition of ME/CFS to be Scrapped

ME/CFS

By PENNY SWIFT Continuing to use the Oxford definition (of ME/CFS) may impair progress and cause harm. National Institutes of Health Pathways to Prevention Workshop: Advancing the Research of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome draft statement The United States National Institutes of Health (NIH) has issued a draft report that highlights the dire need for scientific research that will help find ... Read More »

ME/CFS Research UK Slams Lancet Psychiatry Report Advocating Exercise for Chronic Fatigue Syndrome Sufferers

ME/CFS

By PENNY SWIFT ME Research UK has slammed an analytical report published in the latest The Lancet Psychiatry that claims ME/CFS patients have “fear avoidance beliefs” that exercise will exacerbate their symptoms. This, the report maintains, is a major negative factor that perpetuates both fatigue and disability in Chronic Fatigue Syndrome (CFS) sufferers. In other words, the report is claiming ... Read More »